#tachycardic

Me walking 15 NYC blocks to ge

Me walking 15 NYC blocks to get here should speak for how great these donuts are and not how greedy I am... #Burnedthecaloriesimabouttoeat #tachycardic #nyc #Donuts


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Friday was the longest day of

Friday was the longest day of what seems like my entire life, and I've had some pretty darn long days in the past few years. The past 3 months I've been extremely fatigued, out of breath easily, and an imense amount of pain. I had an appointment with my Oncologist, and we scheduled to do a follow up next week that we will be doing a joint video conference with my Hematologist. I'm close to being due for my 6 month follow up consults and tests, but my mind and nervous system couldn't wait another month. So here we go. I'm betting we'll be doing labs, a bone marrow exam, and another biopsy to see if there have been any changes in 'cell blasts.' I'm praying that everything will check out normal, but I feel pretty awful for things to be normal. I'm not ready to go through any treatments of any kind once again, so things better check out okay or we'll be doing the tests again until they do, lol!!! Prayers and positive energy welcome in any amount, my heart is open. I love you all, and hope everyone is able to have a good day today! ♡☆♡☆♡ #chronicillness #chronicallyill #dysautonomia #invisibleillness #posturalorthostatictachycardiasyndrome #gastroparesis #fibromyalgia #eds #tachycardic #IgAdeficiency #nausea #vomiting #chronicpain #chronicfatigue #ivmeds #tubefed #pancreatitis #svt #professionalpatient #fighter #survivor #lls #bonemarrowexam #bonemarrowtest #bethematch #cancerawareness #leukemiaandlymphomasociety #leukemiaawareness #somedayistoday #deletebloodcancer


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💗This babe!! #Making #Mum #

💗This babe!! #Making #Mum #tachycardic #since #2012 👧🏼#hannahvalerie #crazykid💜


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Been a long time since I’ve

Been a long time since I’ve needed one of these babies. Day 1 of my 30 day heart monitor ❤️About a month ago I had a sudden and unexpected #tachycardic episode. It weakened my muscles and made my skin feel tingly as if I had the flu. No amount of rest would make it go away so decided to double up on my heart medication which finally calmed down my #palpitations I’m feeling much better now 😊Doc just wants to make sure the old ticker is doing it’s job. . . . . #cardiomyopathyawareness #heartmonitorssuck #tachycardiaattack #cyborg #mitochondrialmyopathy #mitochondrialdisease #mitochondriaisthepowerhouseofthecell #spooniestrong #spoonielife #bodypositivity #noabsinsight #nobodyshamehere


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Y’ALL @taylorswift JUST LIKE

Y’ALL @taylorswift JUST LIKED AND COMMENTED ON MY PHOTO AND I HAVE ZERO CHILL. #neverthoughtitwouldhappen #tachycardic #whatishappening #taylorswift #bestday


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Waiting on the Christmas colle

Waiting on the Christmas collection got me like..... 😓😓💓💓 #anxious #waiting #tachycardic #lularoe #christmascollection


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My wonderful Daddy brought me

My wonderful Daddy brought me a singing and dancing bear yesterday that made me laugh so hard that the nurses measuring my heart rushed up from the observation room to find out if I was in distress!🤣😅. Totally awesome surprise!💘🐻! Hoping I'll get out of here today *fingers crossed*#asthma #sucks #respiratorytherapist #rock #amazing #family #love #bear #singing #dancing #pulmonologist #hospital #doctors #nurses #awesome #nosleep #tired #iv #breathing #treatments #tachycardic #ugh


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First he sent me this and said

First he sent me this and said "Aww at least you look cool". I was like "I look like an alien" he was like " 😎More like a BOSS alien lol" and sent me the starwars pic on the left😉🤣🤝 Then I sent him a pic of my third iv He said "You keep this up bouta come out with Super powers!" And sent me the top pic to go with my bottom pic smh lol🤣😅🤝 I love you @photographytitans! Thanks for the laughs🤣🤝😉 #asthma #sucks #respiratorytherapist #rock #pulmonologist #hospital #doctors #nurses #awesome #nosleep #tired #iv #breathing #treatments #tachycardic #ugh


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What a week it's been! My fami

What a week it's been! My family and friends are the most amazing people I've ever had the pleasure of meeting/sharing my life with! @anitagibsonedu, Daddy, @countrycrushtv, @solaearrings, @skadoosh83, @doloresoul, Aunt Denise, Aunt JaNeen, and Nanny provided physical/in person support, @artbykurisu, Tameca, Darrius, and @humble_116 provided emotional and encouraging phone support, and @photographytitans provided the much needed comic relief and encouragement! I couldn't love them more if I tried!💘#asthma #sucks #amazing #family #respiratorytherapist #rock #pulmonolpgist #hospital #doctors #nurses #awesome #nosleep #tired #iv #breathing #treatments #tachycardic #ugh


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